The added value of patient organisations | The European Patients Forum
The objective of this report is to emphasise the contribution of patient organisations in representing and voicing the situation of a specific population that would otherwise not be represented.
Patient organisations are able to help policy-makers understand the experience of living with a disease or a condition. They use this ‘end-user perspective’ to promote the interests of patients at all stages of policy development and in a range of institutional settings.
The main activities of patient organisations are set out in four different areas: policy, capacity building and education, peer support and research & development (both health and pharmaceutical).
Full report: The added value of patient organisations