End of life care

End of life care in England: a briefing paper | IPPR

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Image source: http://www.ippr.org

This paper provides a brief summary of issues around end of life care including the impact of location on the quality and cost of care; analyses data on the current location and cost of end of life care in England; and appraises the current policy agenda in this area, suggesting key areas where improvements should be made.

Full briefing: End of life care in England: a briefing paper

 

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End of life care collaborative

NHS Improvement have published information about the End of life care collaborative.  They ran a 150-day programme, involving 16 volunteer trusts, to improve end of life care across a number of settings to improve the experience and quality of care received by patients at end of life.  They have published the following case studies:

Chesterfield Royal Hospital NHS FT
Sheffield Teaching Hospitals NHS FT
Rotherham NHS FT
Hillingdon Hospitals NHS FT
St George’s University NHS Trust
Cumbria Partnership NHS FT
Colchester Hospital University NHS FT

 

Choice in end of life care

How the National End of Life Care Programme Board is delivering personalisation and choice in care for people at or near the end of life. | Department of Health

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This report sets out the progress the National End of Life Care Programme Board has made in implementing the government’s choice commitment.

The measures include:

  • supporting the roll-out of digital palliative and end of life care records to all areas by 2020
  • inspecting and rating NHS hospital and community services for end of life care
  • providing support to trusts to help them improve end of life care services
  • testing personal health budgets for people approaching the end of life to give them choice and control over their care
  • developing metrics to assess quality and experience in end of life care
  • working to change the nursing and medical undergraduate and postgraduate curricula to improve patient choice and quality of care

Full report: One Year On: The Government Response to the Review of Choice in End of Life Care

End of life care for people who have a learning disability

This guidance document provide resources and tips for commissioners, service providers and health and social care staff providing, or delivering care to people with a learning disability at the end of their lives. | NHS England

The resource provides a number of ‘ambitions’ regarding end of life care for people who have a learning disability, and contains ‘top tips’, resources and good practice examples to support the achievement of each ambition.

Full document: Delivering high quality end of life care for people who have a learning disability: Resources and tips for commissioners, service providers and health and social care staff.

Improving hospital-based end of life care processes and outcomes

A systematic review was undertaken to examine the quantity and quality of data-based research aimed at improving the (a) processes and (b) outcomes associated with delivering end-of-life care in hospital settings | BMC Palliative Care

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A total of 416 papers met eligibility criteria. The number increased by 13% each year (p < 0.001). Most studies were descriptive (n = 351, 85%), with fewer measurement (n = 17) and intervention studies (n = 48; 10%). Only 18 intervention studies (4%) met EPOC design criteria. Most reported benefits for end-of-life processes including end-of-life discussions and documentation (9/11). Impact on end-of-life outcomes was mixed, with some benefit for psychosocial distress, satisfaction and concordance in care (3/7).

More methodologically robust studies are needed to evaluate the impact of interventions on end-of-life processes, including whether changes in processes translate to improved end-of-life outcomes. Interventions which target both the patient and substitute decision maker in an effort to achieve these changes would be beneficial.

Full reference: Waller, A. et al. (2017) Improving hospital-based end of life care processes and outcomes: a systematic review of research output, quality and effectiveness. BMC Palliative Care. Published: 19 May 2017

New go-to website for resources and learning in palliative and end of life care

Nicola Spencer introduces the enhanced Ambitions for Palliative and End of Life Care website which will be the new go-to place for resources and learning | NHS England

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Struggling to keep up to date and informed on changes impacting on palliative and end of life care? Not sure where to find the latest resources and improvement examples?

Then you will be pleased to hear we have launched a tailor made national End of Life Care (EoLC) Knowledge Hub providing you with a ‘one stop shop’ of palliative and EoLC information.

This hub provides anyone involved in the commissioning or provision of palliative and end of life care with a quick and easy way to source information, including helpful tools and resources to drive delivery of the Ambitions for Palliative and End of Life Care – a national framework for local action.

Read the full overview here

Find the website here

Community based end of life care commissioning

Public Health England has published Public perceptions and experiences of community-based end of life care initiatives: a qualitative research report.

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This report is aimed at commissioners of end of life care services to support new ways of commissioning through using public health approaches to build compassionate communities. The key objectives of the research were to understand the awareness and knowledge of community end of life care across a number of key audiences; their perceptions of community end of life care; their experiences of end of life care and any community initiatives; and any improvements that could be made to community end of life care.